Who Can Refer Patients for Admission to the Hospice
Northeast Program?
Physicians
Patients
Family Members or Friends
Discharge Planners
Clergy
Interdisciplinary Team of Long Term Care Facility
Does Hospice Northeast Serve Only
Cancer Patients?
Absolutely not. Hospice Northeast provides care to all
patients with life-limiting illnesses including but not limited to cancer,
AIDS, end stage Alzheimer's, congestive heart failure, end stage Parkinson's
disease, chronic obstructive pulmonary disease, ALS (Lou Gehrig's Disease),
multiple sclerosis and other end stage chronic childhood diseases including
muscular dystrophy and cystic fibrosis. Breakdown by illness in
1996-1997 is as follows:
60% |
|
cancer |
8% |
|
respiratory disease |
2% |
|
AIDS |
16% |
|
circulatory problems |
14% |
|
other illnesses including end stage renal liver failure
and Parkinson's Disease.
|
Does Hospice Northeast Provide Spiritual Support
to Patients and Families in the Program?
Yes. An extraordinarily important part of
Hospice Northeast services is the spiritual support and comfort offered
to hospice patients and families. There are 3 chaplains who as part
of the Hospice Northeast team are available to provide spiritual guidance
and direction to our patients and their family members upon request. The
chaplain is also available to provide assistance or consultation with the
patient's minister, priest or rabbi. This service distinguishes Hospice
Northeast from other home health care agencies and addresses a very important
part of care for terminally ill patients and their loved ones.
Does Hospice Northeast Offer Grief Counseling and
Bereavement Services?
Yes. Hospice Northeast provides bereavement assistance,
individual consultations, bereavement support groups and informational
booklets on a variety of grief related topics. All of the Hospice Northeast
programs are provided to hospice families up to 13 months following the
death of their loved one - free of charge.
How Does Hospice Northeast Receive Reimbursement
for Hospice Care?
- Medicare
- Medicaid
- CHAMPUS/TRICARE
- Private Insurance
Hospice Northeast
provides services to patients and families regardless of age, race, religion,
gender, and ethnic background, handicap, diagnosis or ability to pay.
In cases where patients do not have hospice coverage,
Hospice Northeast services are covered through memorial donations, contributions,
wills and bequests, foundation grants and fundraising events.
What is Hospice Northeast's perspective regarding
end of life care?
As an organization which provides care to terminally ill patients, Hospice
Northeast is on the "front line" in the end-of-life battle which is raging in our
court system. The strongest tenant of the hospice philosophy holds that death
should neither be hastened, nor should the dying process be prolonged. Each day,
we see patients, families, and physicians, struggling with the moral, legal,
and ethical issues posed by making difficult choices about treatment options,
while trying to weigh the quality of life issues inherent in serious illness.
In most cases, those struggling with these dilemmas on an individual and
personal level are burdened with a lack of support, incomplete information, and
a large amount of very understandable anxiety and uncertainty.
As patients and the medical community address these very difficult end-of-life
issues, the right-to-die and physician-assisted suicide movement are
receiving intense media attention. While their message and mission is being
clearly communicated, the perspective of the hospice movement and the
resources which hospice care has to offer, are being underplayed or
completely overlooked. For those dealing with the fear and pain which are
often part of lifelimiting illness, the lack of understanding that options
to either suffering or committing suicide do exist, sends a disturbing and
dangerous message: assisted suicide is an acceptable, desirable option, and the
only one available.
Medical treatment and technology have advanced rapidly, bringing with
them real hope for patients who would have faced death or disability
only a few years ago. The boon in treatment has brought with it some
troubling side effects as well: rapidly escalating medical costs,
treatments applied without consideration to the patient's prognosis
or quality of life; and concern over the amount of medical care
resources consumed by treatment in the last few months of life. All of
these concerns have at their core some decidedly "gray" moral and
ethical problems, for which our society has not yet reached a solution.
As medicine has increased its efforts to cure, many critics charge that
the equally compelling considerations of comfort, and the right of the
patient to make an informed decision which considers quality of life
issues, have become less important. Many experts believe that our
medical system's unwillingness to address the importance of comfort,
combined with media attention for Dr. Kervorkian and other
"righttodie" physicians, has provided fertile ground for
the growth of the assisted suicide movement in the United States. The
demand for assisted suicide has made its way to the United States
Supreme Court and the Federal court in Palm Beach, where recently a
patient seeking his physician's help to end his life, has brought
media attention to the dilemma.
The very nature of endoflife issues has impeded an open and
honest dialogue about the moral and ethical guidelines we believe
should apply in these situations. Fear, religious doctrine, legal
liability issues, and dealing with the avoidance of death within our
culture, have fostered the absence of discussions among our medical
providers, public policy makers, and religious leaders, which would
ultimately lead to consensus on how we as a society will address
endoflife matters. It is essential that we begin the difficult
task of examining our duties and beliefs in a frank and open manner.
Our examination must include and recognize all that the hospice
philosophy of care has to offer, and its rightful position as a viable
alternative to physician assisted suicide. Hospice patients are no
longer focused on seeking cure for their illnesses at all costs;
instead, they seek the support of caring staff and volunteers to provide
comfort, and alleviate pain and suffering, be it physical, emotional or
spiritual. We have seen this approach enable patients and families to
enjoy a quality of life unequaled through any other type of medical care
offered to terminally ill patients and families.
Many patients enter our program verbalizing a desire to end their lives.
However, when they find that their physical suffering is addressed, and
have reassurance that their needs will be met as their disease progresses,
they abandon the desire to commit suicide. Patients don't wish so much
to end their lives as they want to know they will not be abandoned and
will find relief of their physical pain and have the very important
emotional and spiritual issues in their lives addressed.
The righttodie movement flouishes in an environment which
fails to address the real human need for comfort, compassion, and control,
in the last months of life. Only when we are able to acknowledge that a
patient's quality of life is a vital consideration in medical care
and treatment at the end of life will we see Dr. Kervorkian out of a job.
Who was Earl B. Hadlow?
The Hadlow Center was named in honor of a very respected
attorney and community leader, Earl B. Hadlow. Near the end of Mr. Hadlow's
life, he accepted the challenge of joining the Hospice Northeast Board
of Directors in an ambitious undertaking; the creation of a hospice residence.
Mr. Hadlow's goal was to establish a hospice residence to serve terminally ill patients
in Northeast Florida and Southeast Georgia. His vision of a hospice residence,
which he shared with his family and closest friends, became a reality shortly
after his death.
Who is Eligible for Care in The Hadlow Center?
The 24-bed residence is available to:
Patients who do not have a caregiver in the home.
Patients who have an elderly caregiver who is unable to
provide the support needed.
Patients who are young and whose husband or wife must
work and care for children at home.
Patients who do not qualify under the Medicaid Benefit in
long term care facilities.
Hospice Northeast receives reimbursement for residential care
(room and board) at The Hadlow Center through some private insurance and
self-pay. The Hospice Medicare Benefit covers ancillary costs such as
medication and supplies related to the terminal illness. No one is ever denied
core services due to their inability to contribute to the cost of their
care.
Call the Hospice Northeast office for more information
regarding services:
Jacksonville
|
904-268-5200
|
Orange Park
|
904-269-4466
|
St. Augustine
|
904-824-3735
|
Kingsland, GA
|
912-673-7000
|
Brunswick, GA
|
912-265-3964
|
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